Here we are still waiting!

At OSHU again hopefullly for the last time for awhile

Well after the 2 hour drive and arriving early to our surgery for Cohen, and were still waiting for an hour. I guess it's more time to spend with the little guy before he goes in. The little guy is starting to show signs of displeasure due to lack of food since 4am last night and no liquids since 8am. Sarah and I are remaining positive and kind of have an idea how this waiting game goes. This surgery for his Hypospadias is suppose to be a day surgery, which after the procedure and some recovery we'll get to head south to Eugene. I will provide a link at the bottom if your interested in what that is. I'll post an update as soon as i can when he's out and were sure that everything is fine.

https://health.google.com/health/ref/Hypospadias

Thanks

In the Clear

So this is a way late post, and most of you may already know this news. But at Cohen's last Heart appointment we were told that he's doing very well. In fact we'll not have to go every month but every six months. This was good news for us. Cohen's overall appearance and attitude has been very positive. He's been a very happy and a cute baby for us, and makes us wish we were independently rich. Other than that I've got nothing for you guys expect our thanks and best wishes to all.

Home

Home has never felt so good. Cohen has been doing well, with the exception of some pain issues. He's gets these crying fits that make you feel like nothing will help. The little guy is on enough prescriptions , it would make Michael Jackson blush. We've been pretty sleep deprived but happy to see our boy smile at us again. Tomorrow Cohen will get another heart echo to see if fluid is still present around his heart. Were hoping that is not the case, he would have to get the fluid drained other wise. This would also result in another trip to Portland to the children's hospital. We can only hope for the best, and i'll post results tomorrow, and on that note. I bid you all a good night.

10th floor

So yesterday was a good day we got moved to the 1oth floor for the remainder of Cohen's recovery. No more P.I.C.U. for us which is good, because the doctors are confident that he's having a good recovery. The little guy is down to just one IV and other then a couple of monitor stickers on his chest. Which is good for being able to pick him up when ever we want. Cohen even gave mom a smile last night even after them having to draw blood twice out of his head, because they have a rough time finding a vien to draw from. We haven't heard yet when we might be able to get to go home, but hope it's soon. Other than Sarah having to deal with a serious lack of sleep, were doing well and our spirits are high. The picture was from last night, and were glad to see him almost back to himself. Tonight Sarah or I are taking Mia to go see Miley Cyrus at the Rose Garden, it will also be the first time Big Sis gets to see little Co-bear. That's the news for now consider yourself filled in.

the Graves Family

New Day

Today has started off to be a way better day. For starters today was the first day we got to hold our little guy since the day of his operation. It was probably the best thing that i could have done today, I also got to feed him a bottle. The doctors on their rounds this morning were commenting on how well Cohen is doing. They plan on removing some of his tubes today, they already removed his catheter. We've also been hearing that either today or some time tomorrow we will be moved to a regular room and out of I.C.U. which will be nice. So things are looking very well and we couldn't be any happier with Co-bears progress. So for now that is what i got for you all, and again thanks for all of your support.

The Graves Family

Off Ventilation

So they got Cohen off the ventilator which was probably one of the most scariest moments for us. I don't think there is anything that can prepare you for that. When they removed the tubes Cohen had a fare amount of sedation medicine in his system which prevented him from being able to take a breath on his own. I'm not sure I could describe in words what that was like for me; I've never felt so helpless. Watching your child struggle to take in air is something i hope no parent should see. I've never really thought a breath was so important till today. Once the doctors gave Cohen some medicine to reverse the affects of the sedative he was able to take a breath and let out a cry. I've never been so elated to see Cohen cry and breath on his own. Trust me when i say that I've never had this big of lump in my throat till today. He's been showing very positive signs since then, and even was able to open his eyes and take a look around. I couldn't be any more grateful for the staff in the P.I.C.U. that were there in the room helping Cohen get through it. For now i can rest easy seeing the little guy being able to breath on his own and let us know when he wants some attention. For now that is all, and I want you all to know that Sarah and I are doing well and hope that each new day Cohen gets a little better

Thanks

the Graves Family